Tag Archives: invention

The Mother of Invention

This weekend I got to spend some time with my twin. I have not seen her in quite a while because she lives in another state and has a large family, which makes it hard to travel. The distance sucks, but we talk a lot, and even when we don’t there is a bond that no one can touch. I think it would be awesome if every disabled person in the world had a twin. Unfortunately that is not something we can market on the UNlimiters’ website.

My twin has been an invaluable part of my UNlimited life. When we were young she was my constant companion and I would work hard trying to keep up with her. In turn, she would adapt her play for me or help me do something. We were always conniving, her and I. I remember when we had a bunk bed as kids. We both really wanted me on the top bunk, so she pushed and I pulled and somehow we got me to the top bunk. We were thrilled; but then, of course, we couldn’t get down from the top bunk.Then there was the time she tied my trike to her bike and tried to tow me along behind her. It worked for about 5 seconds before I tipped over and was almost hit by a car.

She wasn’t always nice, though. We may have been twins but we were still sisters, and sisters can be mean sometimes. She didn’t always enjoy having me tag along. Sometimes our parents forced her to take me with her in the wagon or my stroller; on these occasions she would take me far enough that I was out of sight and earshot of the house, then leave me stranded while she went to play. She also liked to make me pee my pants when she was feeling extra mean.

These days, she has given up on most of her mean tricks. She is still my best partner when it comes to adaptability, though; she is always helping me come up with new ideas. Even though she doesn’t have CP, my sister seems to understand the way my body works in a way that other people don’t. This makes her a good person to brainstorm with. For example, this last weekend we were at a party at our other sister’s house. A bunch of us were sitting on a blanket playing with my baby niece; but I had to lie down on the blanket because I cannot sit up independently on the ground.

I could have easily sat in a chair, but I wanted to feel included. As I was holding myself up, my twin thought that the wrap she uses to hold her baby hands free could be tied around me in a way that would support my back and allow me to sit up independently. There was a lot of giggling, my oldest niece and my mother thought we had gone crazy, but after some thinking and a few strategically placed knots we came up with this:

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It worked, but after fifteen minutes my neck started to hurt, so the design needs some tweaking. Of course, after we posted the picture of Facebook, my ever practical college roommate suggested that this stadium chair might be an easier solution. I will have to try it; if it works I might be a little sad. My twin and I were sure that we had struck gold with this particular idea.

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